Cystic fibrosis – support the tea party!

June 13, 2013 by
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Cystic Fibrosis Kids of Portsmouth is holding its annual Mad Hatters Tea Party next month – July 27th – to raise awareness of the condition (and have some fun, obviously!). It’s a good chance for me to highlight what a worthwhile cause this is to support.  CF is the most common inherited genetic condition – Gordon and Sarah Brown’s son is probably the most recently well-known child to be publicly diagnosed. But it affects many families across the country.

Tea partyWhat’s exciting about supporting CF is how successful the on-going research is: witness the enthusiasm which greeted the Cystic Fibrosis Trust’s new strategy published on April 29 2013.  Work is always going on into gene therapy, microbiology, transplantation and preventing lung damage in young children.

I’ve loaded up two interviews below – one with Rachel Agutter, a young woman with the condition, and one with her aunt, actress Jenny Agutter. Both tell you how it feels to be close to this condition from different family perspectives.

If you want to get involved and are Hampshire/Sussex based, why not come along and have some tea with Alice and the White Rabbit in July, and find out more?  More information: becki@beckishort.co.uk

 

 

About the Author

Victoria Lambert has been a journalist for more than 20 years, and specialises in health and medical matters. She writes for the Telegraph, the Times, the Sunday Times, the Guardian, the Mail and the Mail on Sunday. She contributes to Saga, Geographical and First Eleven magazines – where she is the agony aunt.

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